“I wanted to thank you for sharing your experiences and wisdom in your books, ‘Hard Choices’ and ‘Light in the Shadows.’ I ordered two copies of ‘Hard Choices’ one to give to my mother’s doctor and one for my family to keep and share. It is an exceptionally informative book. My husband is reading it now and it will be a discussion point for our planning for our end of life wants and needs.”

Resources and Links

Helpful information about living with a life-threatening illness and advance care planning

Caring Connections
Provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss. Sponsored by the National Hospice and Palliative Care Organization.

The National Hospice and Palliative Care Organization
Includes copies of advance directives for all states.

Caring Conversations
Caring Conversations® is designed to guide you, your family and your friends through the process of advance care planning. Each copy of Caring Conversations includes a healthcare directive form and a durable power of attorney for healthcare form.

CaringCommunity.org
An online resource for people considering, planning for or engaged in end-of-life issues.

DyingWell.org
Resources developed by Dr. Ira Byock who encourages growth and connection through the end of life.

 

Information on spirituality and healthcare

The George Washington Institute for Spirituality and Health

Benson-Henry Institute for Mind Body Medicine

University of Aberdeen (UK), Centre for Spirituality, Health and Disability

 

Resources for Professionals

Center for Practical Bioethics

Promoting Excellence in End-of-Life Care
Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes to improve health care for dying people and their families. Through the work of innovative demonstration projects and national workgroups we strived to address particular challenges to existing models of hospice and palliative care. The Promoting Excellence project was a time-limited project and no longer operates, but the website is still active and helpful.

Growth House
Provides education about life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Our search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.

Duke Institute on Care at the End of Life
Among other things, includes research on African Americans at the end of life and caring for Jewish patients.

Physician Orders for Life-Sustaining Treatment
POLST (Physician Orders for Life-Sustaining Treatment) is a form that states what kind of medical treatment patients want toward the end of their lives. Printed on bright pink paper, and signed by both a doctor and patient, POLST helps give seriously ill patients more control over their end-of-life care.