Compassionate, informed advice about healthcare decision making

Posts Tagged ‘Hank Dunn’

Grief and Joy at the Same Time?

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Photo by Chris F, Pexels

Have you ever laughed at a funeral? It might happen more often than you think. I’ve joked that laughing at a funeral is to be expected. After all, what are the first three letters of “funeral?”

Of course, I wouldn’t say this to a grieving family. But when I am sitting vigil with a family in the last hours or days of their person’s life, or when I’m preparing for a funeral, I make sure to ask, “Tell me a funny story about your dad.” Or “Did your mother have a favorite joke?”

Almost always, when a family member gives a eulogy, they include some humor. Even in the saddest of times, people want to remember the laughter.

These thoughts came to mind on a recent camping trip as I was reading Margaret Renkl’s book, The Comfort of Crows: A Backyard Year.

Camping and Reading

Camping and reading

Full disclosure here: Renkl’s book has been on my nightstand for at least six months, maybe for 18, since the Christmas I received it as a gift. I read books more when I am out of cell phone range, where there is no wi-fi, and I am by myself in the woods. So I decided to pack it.

Margaret Renkl is a regular columnist for the New York Times. Her Crows book is a gathering of essays about the natural world she observes in her own backyard near Nashville, Tennessee. Occasionally, she expresses concern about the negative effects of climate change that she can see before her very eyes.

“We are creatures built for joy”

The following paragraphs come on the heels of her expressing her concerns about the world:

“We are creatures built for joy. At the very saddest funerals, we can hear a funny story about our lost beloved, and, God help us, we laugh. We can stagger out of an appointment where a person in a white coat has given us the news we think we cannot bear to hear, and still we smile at the baby in the checkout line clapping her chubby hands at the balloons by the cash register or kicking her feet in pleasure at the sight of a stranger’s smile.

“This is who we are. The very best of who we are.”

You can see why my “grief and joy” antennae perked up upon reading this. Renkl concludes,

Margaret Renal

“The world is burning, and there is no time to put down the water buckets. For just an hour, put down the water buckets anyway. Take your cue from the bluebirds, who have no faith in the future but who build the future nevertheless, leaf by leaf and straw by straw, shaping them into the roundness of the world.

“Turn your face up to the sky. Listen. The world is trembling into possibility. The world is reminding us that this is what the world does best. New life. Rebirth. The greenness that rises out of ashes.”

Margaret Renkl, The Comfort of Crows, p. 57

Photo: Kevin Blanzy, Pexels

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Author Chaplain Hank Dunn, MDiv, has sold over 4 million copies of his books Hard Choices for Loving People and Light in the Shadows (also available on Amazon).

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You Can Never Make a Wrong Decision

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“I made a mistake. I made the wrong decision,” the wife of the recently deceased man said.

Several years ago, I spoke at the Centra Hospital in Lynchburg, Virginia. There were about 50 people in the room, including members of the clergy, physicians, nurses, social workers, and just plain folks. I divided my presentation, the first half devoted to helping patients and families make end-of-life decisions, and the second half to the emotional and spiritual issues at the end of life.

When I invited the audience to speak, a lady raised her hand and told her friend’s story. Her friend’s husband had been in a nursing home and on a feeding tube. He was not considered to have the capacity to make his own medical decisions, so all the medical treatment decisions rested on his wife.

On more than one occasion, the patient pulled out the feeding tube. This lady suggested to her friend that perhaps her husband was saying he did not want the feeding tube. Her friend always responded, “He doesn’t know what he is doing.” They always reinserted the tube and resumed the feedings.

“I should have left the tube out and let him die sooner.”

About six months after the patient died, the lady visited her friend. The now-widow said, “I made a mistake. I made the wrong decision. I should have left the tube out and let him die sooner.”

At times, I have heard other family caregivers express similar regrets about decisions made. “We shouldn’t have sent mom back to the ICU.” “I wish we had never started the feeding tube.” “We kept the chemo going way too long.”

You can never make the wrong decision

When I hear remorse like this, I always tell people, “You can never make the wrong decision. You make the best decision you can with the information you have at the time.” In my 28 years of being close to decision-makers, I have never thought someone made a decision intending to harm a patient. People always want the best for the patient. It is only in looking back that they say a decision was a mistake.

I even say “you can’t make a wrong decision” to people in the throes of a decision-making process. I hope to ease the burden they are placing on themselves. These choices can be hard enough. I want to assure these burdened families they can’t make the wrong decision. You just do the best you can with the information you have at the time.

[A version of this blog post appeared in 2011.]

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Chaplain Hank Dunn is the author of Hard Choices for Loving People: CPR, Feeding Tubes, Palliative Care, Comfort Measures and the Patient with a Serious Illness and Light in the Shadows. Together they have sold over 4 million copies. You can purchase his books at hankdunn.com or on Amazon.

Photo by Nik Shuliahin on Unsplash

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