Compassionate, informed advice about healthcare decision making

Posts Tagged ‘Hope’

Looking for a Sign… Calming Amidst Grief

Posted by

I had NEVER seen a street sign like it – “TRAFFIC CALMING AHEAD” – and I collect photos of unique street signs.

Like the one we saw driving home from the Memphis airport the other night: “THIS IS YOUR SIGN TO BUCKLE UP.” (The folks at the Department of Transportation do try to make us smile.)

Or the one I saw years ago when I was speaking in Boulder, Colorado. It was February. I went out one morning for a walk on a pedestrian path. I approached an underpass and could see some patches of ice in the shadows of the bridge.

Not to worry! This progressive, free-thinking university city put up a sign to warn me: “ICE MAY EXIST,” it read. I thought, “This is SO Boulder!”

The sign begged more questions. Ice may or may not exist, correct? Do I exist? If I do exist, how did I come into being? What is the nature of existence? What is the nature of non-being?? Goodness! I was just going out for a walk.

Obvious signs

It’s not just in Boulder that I pondered the meaning of life upon seeing a road sign. While driving home from church in Northern Virginia, I saw a sign that read, “ROUGH ROAD AHEAD.” Ya think? Here I imagined Buddhists writing the road signs with their idea that “life is suffering.”

Then there are the obvious signs. I saw a “WARNING — ALLIGATORS” sign as I put my kayak in the Hillsborough River outside Tampa. The authorities-that-be felt the need to put another sign right below: “NO SWIMMING.” Really? Who was thinking of swimming with the alligators? The people in Florida really are crazy.

 

I was a chaplain for a hospice in Ft. Pierce, Florida, which had a hospice house for patients to spend their last days. There were tables and benches on the grounds for patients, their families, and staff to take a break outdoors. Beside a nearby pond, there was a sign, “WARNING BEWARE OF VENOMOUS SNAKES.” Good Lord, these dying folks have enough to worry about.

Family calming ahead

The “TRAFFIC CALMING AHEAD” sign was on a quiet, tree-lined suburban street in Alexandria, Virginia. This sign was followed by one that said, “SPEED CUSHIONS AHEAD.” I’ve heard them called “speed bumps” or even “speed tables” but “cushions”?

My wife, Sally, and I were in town to attend a funeral for a friend who died after living with ALS for years. Sally had known his wife since before they were married. Over the weekend we twice visited the widow’s home — once the night before the funeral and then for a gathering afterward – and saw the signs.

As we drove to her home, the words on the sign morphed in my head to “FAMILY CALMING AHEAD.” Indeed, it was. The widow and her two college-age children welcomed mostly family into their home the night before the funeral. There was lots of hugging and laughter. The scene was repeated after the service with a larger gathering of friends, business colleagues, and more family.

The grief process can be a rough road for many, but these calming events in the first days are a good place to start the journey.

Could COVID Be the New “Old Man’s Friend”?

Posted by

Here’s the question: Should a nursing home resident with dementia get the COVID-19 vaccine?

There is no question that nursing home residents are at a high risk of dying should they get the coronavirus. That also goes for the underpaid and overworked staff who care for these vulnerable patients. One might think, “Of course, vaccinate them all.”

Not so fast.

I started thinking about this after reading a recent article from the bioethics think tank The Hastings Center, “Too Taboo to Contemplate? Refusing COVID Vaccination for Some People with Dementia.”

Just a month ago I wrote a blog post, “Making End-of-Life Decisions for Dementia Patients.” In it I wrote, “Here’s the question families of dementia patients face as they consider end-of-life decisions: Shall we save his life so he can become more demented and slowly decline further or shall we let him die peacefully?

Dena Davis, J.D., Ph.D., takes a similar approach in her Hastings Center article. She states the obvious: that if a person had declared in an advance directive that in the case of advanced dementia, they would refuse vaccines for flu or pneumonia, then that would also apply for COVID-19 vaccine. But, what of the patient who does not have a written advance directive or has failed to give such specific verbal directions?

Dr. Davis refers to several surveys where people expressed their preference to die sooner rather than spiral down with dementia. In one survey, more than half of the respondents were either “very unwilling” or “would rather die” than live in a nursing home. In another study of seriously ill but cognitively competent people a majority believed that either incontinence or “being confused all the time” were states equal to or worse than death.

We hardly need a scientific study to convince us that losing our minds and being totally dependent on others is a state almost all of us want to avoid. Now, a novel coronavirus comes along that is especially hard on elderly nursing home patients. It is also hard on the caregivers and vaccinating patients is partly to protect these folks and their families.

I agree with Davis’s personal preference that if she had dementia and was confined to a nursing home, she would give her surrogates instructions to withhold vaccines. Me too.

Once, pneumonia was thought of as “the old man’s friend” – a relatively peaceful way for the elderly to die, a welcome visitor. Dr. Davis speculates, “Could the novel coronavirus be today’s old man’s friend?”

Signs of Hope Amid COVID

Posted by

When will our lives get back to “normal?” Is there hope this will ever happen?

I had cable news on the other day and saw this in the crawl at the bottom of the screen: “For the first time, vaccinations outnumber new hospitalizations 10 to 1.”

I took that as a very hopeful sign.

Think about it. Each time a person goes into the hospital with COVID-19, ten more just got a vaccination. And right now, those getting the shots, are the ones most likely to end up in the hospital if they were to get infected — the elderly and those with pre-existing conditions.

I must say, just seeing that crawl lifted my spirits slightly.

And then, there was the day I got my first dose of the Pfizer vaccine. (Yes, I qualified.) I got in the line of cars, filled out paperwork, inched the car along until it was my turn, received my shot from a National Guard member in fatigues, and joined the wait line for observation. My fifteen minutes were up, and I was on my way home.

My spirits lifted a little more.

Zoom brought out his feelings like nothing else

Laura Fraser (in San Francisco) and her 92-year-old father, Dr. Charles Fraser (in Denver) pose for a portrait via Zoom (Carolyn Van Houten/The Washington Post)

Stories continue to be told about the good that has come out of the pandemic. Just the other day the Washington Post ran a great piece about how Zoom has changed a family’s life. Laura Fraser writes about her 92-year-old father, Dr. Charles Fraser, a former physician living in a retirement facility with limited visitation.

Between his flip phone and clunky old computer, Dr. Fraser did not have the capacity to participate in an online chat. So, Laura writes:

“My husband and I bought a cheap laptop, loaded it with his email account, photos, Zoom and a password written in indelible ink on the keyboard, and mailed it off. After many tries, voilà! There he was on Zoom, with his crooked nose from the time a horse kicked him, and the familiar warm brown eyes. I hadn’t been sure I would see that face again, and I teared up.

“That’s all there is to it?” Dad asked. My sisters and their kids dialed in, and Dad held a smile so long I thought his computer had frozen.”

“Before he signs off, he tells us he loves us.”

Laura’s dad had never been one to talk about his feelings, his childhood, how he felt about his children,  or even how much he missed his wife, now gone ten years. On Zoom he has opened up for the first time. She ends her hope-filled story with this:

“A few weeks ago, over Zoom, Dad was able to see his great-granddaughter for the first time. He was delighted to learn that my nephew and his wife have named her after my mother, Virginia. ‘I just can’t wait to hug her,’ he says. His mood has lifted. He laughs as little Ginny burbles and coos. He does something else that’s new for him. Before he signs off, he tells us he loves us.”

Another little sign of hope in a time that needs so much.

Quality of Life Publishing Logo

Quality of Life Publishing Co. is the proud publisher of Hank’s books, as well as other branded educational materials for health care & end-of-life care.

www.QOLpublishing.com

Copyright 2021, Hank Dunn. All rights reserved. Website design by Brian Joseph Studios

Volume Discounts for Branded Book Orders

Minimum quantity for branded books is 100. English and Spanish branded books are sold separately. Click here for more information or contact us with questions.

Black

  • 100 to 249 copies: $4.00 each
  • 250 to 499 copies: $2.84 each
  • 500 to 999 copies: $2.24 each
  • 1000 to 1499 copies: $1.69 each
  • 1500 to 1999 copies: $1.43 each
  • 2000 to 3999 copies: $1.30 each
  • 4000+ copies: $1.11 each

Color

  • 100 to 249 copies: $6.65 each
  • 250 to 499 copies: $3.95 each
  • 500 to 999 copies: $2.79 each
  • 1000 to 1499 copies: $1.96 each
  • 1500 to 1999 copies: $1.61 each
  • 2000 to 3999 copies: $1.44 each
  • 4000+ copies: $1.17 each

Volume Discounts for Unbranded Book Orders

Discounts apply to the total books ordered of all titles. Mix and match to get quantity discounts on unbranded books.

  • 1 to 9 copies: $7.35 each
  • 10 to 24 copies: $5.13 each
  • 25 to 49 copies: $4.24 each
  • 50 to 99 copies: $3.75 each
  • 100 to 249 copies: $2.87 each
  • 250 to 499 copies: $2.37 each
  • 500 to 999 copies: $1.98 each
  • 1000 to 1499 copies: $1.54 each
  • 1500 to 1999 copies: $1.32 each
  • 2000 to 3999 copies: $1.21 each
  • 4000+ copies: $1.05 each
There are no products